Wednesday, July 21, 2010

carpe diem, baby...





And in the vein of being present and enjoying the moment....


Yes, we do occasionally try to do a little carpe diem-ing around here and live life up! It is summer, after all, and they say it only comes once a year. We are trying to grab what we can of it and squeeze out the most enjoyment possible. Here's proof!


Saturday, July 10, 2010

no awareness...no life!

Had a near accident yesterday with my kids along...we were behind about 4 cars in a 'conga line' (formerly known as 'wolf pack' from my high school drivers' ed. teacher!) and there was a van behind us that was nervously darting in and out. I had been watching the van, because I knew they were impatient, and I kept thinking; "no way will she pull out and pass me...where will she go?" Sure enough, no sooner had I repeated that to myself for about the fourth time when she pulls out to pass me...then proceeds to pull in front of me, (with me being about 1/2 car length from the car in front of me) causing me to slam on the brakes to keep from running into the ditch. If we hadn't been watching her, we probably would have hit the ditch or maybe rolled...I am still sick about it.

Of course, my anger at this idiot kicked in and I proceeded to follow her to our town. I pulled up into the hotel parking lot that she went to and then another van pulled up behind me. A woman got out and came to my window and said, "She almost ran you off the road!" I said, I know!! Then, the woman who almost destroyed us came walking out of the hotel and the lady next to me said, "Did you know you almost ran these people off the road?" Then, I said, "Nice driving...I will be reporting your drivers' license to the police." She proceeded to LAUGH and got in her car!

The icing on this vehicular cake? Her license plates' case read as follows: "No Jesus, No Peace; Know Jesus, Know Peace." Yeah.

What ever happened to people actually living a good life, as opposed to telling us how great a life they are living? I think if you are going to proclaim how great a Christian/Buddhist/Catholic/Mother/etc. that you are, maybe you should also be doing the work. What about driving carefully instead of driving like the devil? (Or, driving like you want to see the Big Guy sooner, rather than later?)

I had to laugh, later, at the beautiful irony of this woman. Driving around proclaiming to know it *all* when it comes to Jesus and Peace, and then driving in such a reckless way that she almost obliterated me and my children.

By the way, Jesus called. He said you are a horrible driver.

Thursday, July 8, 2010

joy hunting



Well, it has been awhile, eh? We have been trudging along...fighting UTIs and severe constipation issues, speech devices that don't work, behaviors, weather issues, etc. It has been an uphill battle around here as of late. I am hopeful things will start to perk up soon.

Mason's speech device has been circling the drain for some time now; we are waiting for it to totally die, so I can send the parts to our insurance company, who denied replacing it before the five year window is up. I agree that we shouldn't need one before five years, but we do, so that's what should happen. Our therapist told us they usually deny on the first try, so now we can either appeal it or just have Mas live without a voice. Guess we'll be appealing....amazing how us "special" parents get put in situations where there's a rock in front of us and a hard place behind us....over and over again!

Mas has decided to scream bloody murder whenever we run the faucet sprayer, which is just about as annoying and time-consuming as it may sound. Makes washing dishes or cleaning up in the kitchen about as much fun as a root canal. Not sure how/where/when this started, but it is getting old and taking a toll on all of us. He has also been doing his morning screaming session that he used to do when he was younger; he walks around the house and screams from about 8 am until 11 am. We suspect it is related to constipation issues, but have never been sure.

As a family that supports Mas, we love him sooooo much. We are also growing weary and there are starting to be more and more questions about how much we should all bend for him. Some days it feels like we will all snap. I know he is a gift from the Heavens and we could have it much worse, but I also know the work required to keep him healthy and happy is really riding the line as far as what we are able to do at home. I keep trying to remind myself he's better off at home, but it begs the question, are we better off as a family? I hope the answer stays yes for a long time, but I can vouch for the fact that we are all tired and weary and running out of ideas to keep him happy and healthy. I really don't know how families with more severe kiddos do it. How do they do it?

We are trying to find joy every day and trying to remind ourselves that he would rather be able to speak and control himself better, too, and that he would probably rather urinate in the toilet than in a diaper...I guess I'm just starting to see the impact he's had on the rest of the family now that I see it reflected in other people's eyes. I guess there is a well of strength families have to draw from, and we are just needing to dig a little deeper.