This is where I'd rather be right now...all the time, actually. Sitting on a humongous rock by a lake in northern Canada, listening to the wind blow through the trees and the loons call in the background...having a shore lunch while thoughts of big muskies dance in my head...ahhhh! Three thoughts for today:
1) Kids are only fun if they sleep,
2) Mas never sleeps,
3) I am only fun if I sleep.
Wednesday, March 28, 2007
Tuesday, March 27, 2007
Just got to thinking today about people and the things they say, and thought about trying to keep a log somewhere of all the strange things I hear in reference to our handicapped son. I realized I've already forgotten many of the best ones, but I could start keeping track of them now on this blog, and jot down the ones that happen and the ones that I remember from the past. Just a few weeks ago, while I was at a doctor's appointment, a nurse was talking to me about my son. She said, "Well, you are really lucky that you'll never have to worry about him driving." I said, "How's that?" She replied, "Well, you'll never have to worry about him being out on the road in bad weather, or driving after he's been drinking, or any of that." Isn't the human mind simply stunning in it's idiocy sometimes? Can you IMAGINE telling a parent to be thankful that their child will never do the normal things a teenager does? Why would that be something to celebrate? I'd much rather have him get picked up for a DUI someday or slide into the ditch than never be able to drive a car. I realized that day that truly, people with so-called "normal" children will never be able to understand what we are dealing with as we raise our son. As my husband just said a few nights ago, how could anyone possibly understand what we've been through with Mas? I think there are people that are very kind and would like to know, but in all honesty, unless you've been up for four hours during the night and had to change diapers for nine years and had people give you angry stares and never heard your child speak a single word, you have absolutely no idea what it is like to be the parent of a handicapped child. And, there's really no way to describe it. Of course, this lady wasn't trying to be mean, but it reminded me that no one can assume to know what someone else is going through at any particular point in their life. All we can do is be there and offer what support we can. My lesson: never assume what someone else's journey feels like for them. Just try to help keep them on the path.
Sunday, March 25, 2007
Well, so it appears I haven't been posting very much lately...that is due to the new event in my life...attempting to toilet train my son. As he is 9 1/2 years old, the fun and magic part of it are long gone. As he is severely handicapped, the challenge factor is high. As I am impatient by nature and so is he, the challenge factor is even higher. The good news is, they are helping us out by trying to train him at school. The bad news is, he comes home after school and on weekends! We are achieving a minor modicum of success at this point. I believe he is trainable, but worry about how much sensation he truly has as far as; can he tell he's about to go, can he hold it while we find a bathroom, etc. This is one of those areas where having the body of a 9 year old and the mind of a 2 year old is not the greatest combination. A very trying time for us both. I figure if it's meant to be, he will start to get the swing of things soon. If not, then we will end up back in pull-ups before too long. Ah, the glamorous life of having a handicapped child in a world where "different" is a bad thing...it's one of those times when hearing people whine about "normal" things makes me have to bite my tongue, hard, so as not to yell at them that having to get glasses for their kid is not the worst thing in the world! Grrr! Wish us well on the long road to mastering toileting.
Saturday, March 17, 2007
Tuesday, March 6, 2007
What is it that makes music such a singular event for people? Riley brought her iPod along to school today, and had me listen to Korn. While I liked the music, I am not hearing what she hears. The flipside of that is true for her when she listens to Frank Sinatra. She does not hear I what I hear. When I listen to Frank, I hear rock-solid trumpets, wailing up in the high register and never missing a note. I hear trombones that give me goosebumps. I hear Frank singing and I can see him; see his gestures and feel his pain. Riley hears an old guy singing about "boring stuff." When I hear Geddy Lee play bass, I can see him on stage in 100+ degree temps, his fingers dripping with sweat and occasionally sliding off the strings. I can see him interacting with Alex and Neil and I can feel their music. Some people feel nothing when they hear him play. When I hear Rosemary Clooney sing, I am captured by her luxurious phrasing, her completely captivating lower register, and I can see her smiling and singing her way through White Christmas. I heard Karen Carpenter this morning on my Sirius radio, and I thought for moment; will the world ever know a singing talent as rich as she was? Her voice sends shivers down my spine; makes the world feel right for just a moment. Listening to Eddie Van Halen on Eruption reminds me of that feeling you get on Christmas Eve; full of anticipation for what is to come. Hearing Kenny Putnam make his strings sing makes me feel as though I am flying. The depths of my soul are triggered by many different types of music. My daughter listens to a lot of music lately with a lot of screaming. I just hear screaming. She, however, hears lyrics which perfectly match the stage she is going through; the angst of the pre-teen years and the righting of the ship of emotions that besets us all at that age. I think this is why I am so enamored of music in general; the thought that everyone is touched by it differently, and there is ultimately no explanation for how someone will react to any given piece of music. When I hear Paul McCartney singing "Silly Love Songs", I'm at the Canistota pool swimming and losing my favorite earring and eating a chic-o-stick and smelling chlorine in my swimming towel and riding home with the windows down and wet hair on the back of the seat. What do you hear?
Monday, March 5, 2007
Riley's Junior High Jazz Band played at the Adrian Jazz Festival tonight. They rocked the house! One of their songs was a Queen medley, and when they got to "We Are The Champions", the high school jazz band all got out their phones and opened them up with the lights on and swayed back and forth like they were at a concert! It was hilarious! Anywhoo, the girl in the back with the hair in her face is Riley! She did an awesome job and we were very proud!
Saturday, March 3, 2007
Well, we were finally the bride in the blizzard department...along with a lot of other people. We had a pretty nice sized blizzard here the past couple of days. I'm snowed in with the kids, so we're going a little stir crazy by now, but not too bad. I started to snowblow our driveway yesterday afternoon, but quit when the snow was over the top of the snowblower. Thankfully, our neighbor used a skid loader to clear it lastnight. Now there are just a few finger drifts left to contend with. On a brighter note, this morning we have a bright blue sky and all sun, which is nice to see after days of white. It sure makes spring feel like a long way off!